Monday, September 17, 2012

We Need Seizures!


Once again I'm reminded of the roller coaster we're on with epilepsy. Life can be going along smoothly and then suddenly Seth is hit with a seizure out of nowhere. On the other hand, at times like now, we desperately need him to have a seizure and we've got nothing. 

Seth had a very good weekend with few complaints of pain, but no seizures. Unfortunately that means no surgery tomorrow. Surgery is going to be rescheduled for a week from tomorrow, but if Seth would start having seizures in the next day or so, there is a possibility that surgery could be completed on Friday of this week. At this point we still have time to wait. However, if we get to next Tuesday and Seth has still not had any seizures, then we will need to talk about a plan to remove the grids. Seth's neurosurgeon is comfortable leaving the grids in for up to three weeks, but will not go longer. 

If we get to next Tuesday with no seizures, there could be a possibility that the grids will have to be removed and we would be sent home without being able to complete the surgery at this time. With all that Seth has been through, I don't even want to think about this as a possibility, but I know that it could be a reality. I will be so very discouraged if this is the case. Right now I am going to do my best to remain hopeful that we will get what is needed to move forward with surgery. 

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.” Jeremiah 29:11




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