Tonight we started tapering Seth's meds in preparation for surgery next week. He will be completely off one of his meds by the weekend, and will remain on his second med. If he goes through the weekend without any seizures, they may start tapering his second med on Monday. It is such a fine balance for them to taper so that he starts having seizures once he is in the hospital and after the grids are placed on Tuesday morning. As a parent, this is an anxious time and we are hypervigilant in monitoring Seth.
Tonight we also celebrated Seth's 10th birthday, which is still a few days away. We wanted to celebrate while he is still feeling good and able to participate with less risk of seizures to interrupt. Plus we wanted him to have time to play with his new toys and build his Lego sets before heading to the hospital. He was one surprised and very happy boy.
Happy birthday sweet boy! Hoping your 10th year is the best ever!
.JPG)
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