How Do You Say Yes? How Do You Say No?

When I look back over the last couple months, I realize that I was incredibly naive when we started down this road. I had no idea where we were headed, or how difficult this would be. Knowing what we know today, how do you say yes to brain surgery for your child? On the other hand, how do you say no? How do you weigh the potential benefits against the potential risks? The questions are agonizing and relentless. I find that I'm continually questioning and second guessing myself and our purpose.

We found out today that the neurologists have ordered additional testing, including a SPECT scan and functional MRI, which will require another inpatient stay. Because the SPECT could not be completed during Seth's last inpatient stay, this time they will completely strip him of medications to ensure that he will have a seizure so the scan can be completed. We do not yet know when this will be scheduled, but all indications are that it will be soon.

Your continued prayers and support are very much needed now. Please pray for all of us, but especially for strength for Tony and me, that we are able to confidently make the best decision for Seth's long term benefit. Your prayers and messages of support are truly appreciated.