Inpatient Again

Tomorrow morning Seth and I return to Children's for another inpatient stay for more testing. This time we are going to try again to complete the SPECT scan, which requires him to have a seizure, and be injected with an isotope within 30 seconds of the start of the seizure. This will help further pinpoint the areas of the brain that are active during a seizure. This also requires continual video EEG monitoring. Seth is not looking forward to more electrodes, but missing a week of school does sweeten the deal!

We started tapering Seth's meds on Friday night, and by this evening he is now down to one medication. He has had a cold for several days, and started feeling worse today. As the afternoon progressed, he was having chills and complained of a headache. Knowing that Seth is more prone to seizures during periods of illness, and due to the fact that he is on reduced medication, we were monitoring him closely. Shortly before 7pm he had a seizure that lasted several minutes and then spiked a fever. Seth's headache worsened afterward, and he was quite uncomfortable until the ibuprofen took effect and gave him some relief.

My hope for this week is that the SPECT can be completed. Once Seth is admitted, he has to have seizure activity before they will attempt the SPECT. Since we've already seen a seizure tonight, I'm keeping my fingers crossed that this will be accomplished, and quickly. Time will tell...